Awareness

This weekend last year we pleaded with you, yet again, to raise money, awareness, and prayers for Batten's Disease, Celia, and Celia's family as we've done every year since we started our blog in 2008.

This year I find myself searching for the right words for this weekend and I've discovered there aren't any. How do I, a mother of a daughter who's nestled snugly in her bed for her afternoon nap, have the right to describe the urgency of this cause? So please humor me as I hand this post over to Celia's mom.....http://www.betzfamilycolumbus.blogspot.com/