These kids (Brooke Hess, Tucker Betz w/ sister Celia, Luke Goode, Noah Hess, and Molly Wendel) are learning this lesson the hard way. In case you haven't heard (read), Celia has Batten's Disease. If you're interested in being a good friend and doing something special to raise awareness or money for Batten's Disease this is the weekend to do it! Here are some upcoming opportunities!
June 12 -- until then, order jewelry from CaleCamo and 20-25% of your purchase will go to BDSRA for research.
*To read about promising research that has finally reached clinical trials and has been funded partly by BDSRA, go here.
Indefinitely -- order the Sweet Celia headband from Maya's Curls, and thirty percent of the sale will benefit BDSRA.
Indefinitely -- order Celia's Cardthartic card and profits will go toward infantile Batten research.
through mid-July -- follow Noah Coughlan as he continues to run across the country promoting awareness. Pledge per mile this weekend, if you can.
July 30, 2011 -- walk or run in the Heart of Ohio 5K/10K/1M event in downtown Columbus. HoO promotes numerous Ohio-based non-profits and BDSRA has been invited to participate this summer.
October 15, 2011 -- bring your pooch to the 2nd annual Barkin' for Batten Dog Walk at Hannah Park in Gahanna at 11:00 am.
November 2011 -- join us for the 3rd annual OSU MICU's Walk for Celia at Antrim Park, near Worthington. Exact date and time to be determined.
Thank you, JEB, for putting together such an extensive list of Batten's opportunities!
1 comment:
Jenni (and the rest of us) are certainly lucky to have you in our circle of friends.
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